facebook is like a big social network but they have registerd organisations etc.
http://www.facebook.com

Hi grahams222,
Sorry for you loss, hear are a couple websites for CF orginization (my best friend has cf so i am very eager to help, pm if you want)

http://www.cff.org
http://www.cfri.org

I'm not sure exactly what you you looking for those are the main ones.

Never heard of "facebook" can you give me more info?

Thank you

have ypu tried face book as i no there is loads of groups on there for cf

What I had done was sent out letters again including emails to those that I have already sent letters to & got responses back.

Looking to see if anyone knew of any other Organizations that deal with CF.

I am so sorry for u loss hunny, what sort of things are you thinking of to raise funds , ive just sent our 48 letters hoping i will get something back to auction at our charity event

I got a phone call a few days ago, actually it was Thursday that my 32 yr old niece died of CF.

Besides the people that I have already sent letters to for the Back to School Fair & have received items for.

I am going to resend out letters for a fundraiser for Angie, does ANYONE else have any more ideas?

Thanks guys
Sylvia